Father of 4-year-old with rare syndrome asks for Medicaid changes

Avery Creese is just 4 years old and she has a rare chromosomal syndrome called Phelan-McDermid.

It has a lot of different symptoms, one of which makes it difficult for her to speak because she’s often in her own little world.

Her father – a single dad of three children – makes too much money for Avery to qualify for Medicaid and Avery’s condition doesn’t qualify for a Medicaid waiver.

Now, Avery’s dad has started a petition to make sure Avery and others like her can receive the care they need.

If you would like to help, visit her Change.org petition. 

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